PATIENT: SKY
Sky is a 15-year-old Native American boy from the Wintu and Karuk tribes; he resides in Northern California with his parents, Leah and Dan. He is the youngest of four children. Sky's mother Leah describes him as smart, spiritual, well-liked and a complete gentleman. He participates in Civil War re-enactments with his father Dan. Sky is a perfectly normal teenager except for one difference: He has been having seizures for the last seven and a half years.
Leah first noticed the seizures when she saw his thumb twitching and thought it might be a magnesium deficiency. The condition worsened, and one day, a month after the thumb incident, she realized he was having a grand mal when she found Sky in respiratory arrest. An MRI showed something in his brain that was initially thought to be a tumor but was actually a stroke mass. Sky went on medication that stopped the seizures for two years and Leah thought it was over. Then, at 11, he started having grand mals again. Sky has complex-partial seizures, which can be aggravated by stress.
His seizures were originally thought to be non-epileptic. This diagnosis resulted from the work that Leah does. She is a medicine worker in the tribe. There is a Native American belief that seizures mean that you have a gift for medicine work, so Sky's seizures were attributed to it. Leah says that he will eventually develop this natural gift of medicine when he gets older.
At the University of California, San Francisco, Victor Perry will operate on him. Sky will first have a grid implanted on his brain to record brain activity and locate epileptic areas. One week later, Dr. Perry will resect the epileptic areas. Sky will have two brain surgeries in the span of one week. The great hope is that these potentially life-threatening and neurologically debilitating seizures will be eliminated and that Sky will be freed from the prison-like hold of epilepsy.
Sky has had no seizures in the four months after the surgeries. He still takes seizure medication, but his dose has been reduced. Hopefully, in the next year, he will be free of the medication as well.
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